About me
I myself have been through the most challenging time caused by benzo withdrawal.
It all started with Lorazepam being given to me by a private Dr for tinnitus in the pandemic! I’d never heard of it and was told it was safe, that it would in fact help my tinnitus.. So you trust the Drs right, especially a private one! I had never heard of this drug before, I blindly trusted this man.
It’s truly a miracle I am alive, so I choose to share my story and offer I hope some light, in a very scary dark time, for others going through this. As I was left, and I was not believed at any stage in the withdrawal, I know what it’s like to have family and friends step away in disbelief that a pill could cause such destruction. To fight the darkest thoughts and feelings daily, or for your body to be in a huge amount of discomfort, akathisia being a very common symptom, and an incredibly distressing one.
Oh and let’s not forget…To never sleep!
You are not alone
My Story
My story is quite severe, but what is miraculous is that I am still here, after everything looking like there was no hope for me or that my withdrawal would ever end, it went past the point of no return, I was in a very bad way, from what I was reading on all forums there was no cure, and a very good chance I would never return. There were many attempts to end my life due to the intense suffering that never stopped. My story is so bad because I was given all the wrong advice, by medical professionals. Which sadly and shockingly I found to be a very common story, 100’s of thousands of people are going through this, my story is one of many.
First of all, a benzodiazepine is a drug that is supposed to be used in a crisis situation, as a one off, there are different strengths, Valium everyone knows, Lorazepam is more potent and short acting, to name a few, there’s Clonazepam, Xanax and Oxazepam. They all work on the Gaba receptors in your brain, your glutanmate, which is everything! They calm you, make you feel all of a sudden so much better, like a temporary high. Simular to getting relief when your’e in pain. It also greatly effects your amygdala which is part of the core of a neural system that processes fearful and threatening Stimuli. These drugs cause a lot of damage because when used more than once, the body quickly becomes very dependant on it to function, it’s not designed for long term. Often people even when on it start to feel very unwell as the gaba receptors are being unnaturally fired up and over worked by the pill, eventually the body struggles to produce glutanmate in a normal way. Causing a real life horror show and pretty much a chemical war in your mind and body. It can come through in your mind for example, you start to feel not yourself at all, high anxiety or feelings of terror, insomnia, suicidal thoughts, high agitation or you can get physical pain and all sorts of very disturbing aliments, if I had made a list of symptoms, for me it was over 100. So that’s the science element put in a simple way.
My history with Lorazepam ended up a total mess due to such terrible advice given by Drs! Firstly to be given it to ‘ help’ my tinnitus which is a terrible move as it in fact causes tinnitus. I was told it was safe, they even gave it to old people, and there was really nothing to worry about. So…with a knowing that something wasn’t quite right whilst on the drug, I was getting crazy amounts of anxiety and insomnia as time went on getting worse and worse, I wanted to come off it, so I just stopped it after 6 months use, it was the Drs advice saying that it was safe to stop in 2 weeks. I was hit hard a few days later with the full withdrawal, not knowing what the hell had hit me, I kindelled, meaning I tried taking it again to stop the withdrawal, Drs advice, this only made me feel way worse! I tried antidepressants ( as everyone thought I had mental issues ) and was taken off them rapidly due to them making me so much worse, Drs advice. I tried a crossover to Valium as its longer acting, this was also Drs advice to do a straight switch ( you need a gradual crossover.) It went terribly wrong and I ended up being sectioned in Spain at the time due to the horror show of side effects, causing my nervous system to basically set on fire and my behaviour became totally eractic! I got forced huge amounts of drugs in psych wards, to then be ripped off them, Drs advice. I was deserted due to everyone thinking I’d lost my mind, in the most amount of pain you could imagine in the psych wards, that are full of abusive staff and the patients in thoughs places are not the safest people to be around, not all but of course everyones not in their best place. They are basically prisons, so you get treated like you’re dirt on the floor, you get a huge spectrum of people in there, from a girl who self harms to a serial murderer threatening to kill you. Numerous inhumane things go on in thoughs places, it’s completely unbelievable until you see it yourself. I would cry down the phone, ‘ Help me, I’m being abused ‘ and be met with silence, people just thought I was hallucinating and would say Emma you’re in the best place for you, they’re trying to help you. I would not say the male ‘nurse’ offering to help me with his dick was someone trying to help me. It’s easy when a patient is deemed ‘ crazy ‘ to get away with abuse, but that’s a whole other story!
I did not sleep a wink for the best part of a year, I paced for 24 hours a day, I couldn’t stop moving, this is something the drug withdrawal causes, it’s called akathasia, you just walk back and forth until your feet bleed. My family stepped away in total disbelief that a pill could do this, and they thought it must be me somehow just making it all up. This wasn’t helped by Drs denying my constant claims that it was in fact the withdrawal causing it all. I had severe everything, suicidal ideation, akathasia, terror, hallucinations, the feeling I was being crushed by the universe, I stopped eating or drinking. For 2 weeks I had nothing, by this point I was 5 stone on my last legs, fully in another reality, very close to death, incredibly harmed by the pile of drugs being forced on me in wards. Again due to the benzo withdrawal being totally dismissed and it blamed on my own mental health I was heavily medicated and misdiagnosed. When in withdrawal your nervous system is basically fried, other drugs just add fuel to the fire of a very frazzled nervous system. So all in all I was put in three psych wards in the space of 6 months, and at one point being soo close to death, thankfully I was rehydrated at this point, but then not so thankfully pumped full of antipsychotics. And that’s all just the surface of what went on.

Now yes I am still on medication due to this whole thing, but I am somehow alive. Currently doing a water taper on the Lorazepam to once and for all get off this stuff, I am at present more functional, still with a lot of side effects and especially as I am tapering, it is a brutal experience, but I am sleeping more at the moment, I hope that remains!
I’ve got to this place by listening to a friend of my Dads, who’s stuck on two antidepressants, and had learnt through a site called surviving antidepressants how to taper properly, after his Dr took him off and on these medications too fast causing a severe injury like mine, and now he microtapers in the hope he will get off them one day…
So this is how it happened, I’m pacing my Mums house, no medication given has offered relief, I’ve been through 3 wards, it’s been 8 months, Lorazepam was given to me in the last ward a couple of times, and I would return back to myself for a window of time, then I would go back to screaming and pacing. Before taking it would only make it all worse, I’m on Mirtazipine 30mg, I’m on Quetiapine 400 mg, all they are doing is making me sleep, at this point I’m hoping at some point all this medication will put me to sleep forever, as I’m so bad, it’s that or I somehow getting the strength to jump! I wake at 6am every morning to continue this unimaginable torture. So I’m sleeping but other than that it’s like I’m in hell, my family friend Hans, says look, why don’t you try a small amount of the Lorazepam, maybe it will stabilize you. I had had these little windows before? It really was that or jumping off a bridge at this point, so I tried 0.5 Lorazepam one morning, and within 30 minutes I came back to life. 1000s of symptoms stopped, and I mean bad, I have not yet met anyone in my position with what was going on within my body. I went down stairs and said Mum.. I’m back? I think I am back… my thoughts were mine, my personality was back, I could laugh, I could feel normal sensations through my body, I could sit down. It was really like a miracle!

Now of course I’m not in the clear. I’m still on 3 meds, I am now micro tapering each medication one by one. Following the advice on surviving antidepressants, Hans, and Benzo groups on facebook. Since doing the water taper, I have found side effects to be much milder. With the other two medications I was doing ten percent cuts, and experiencing a lot of effects from doing that, because of my history and the entire mess, things are being done very slowly. There are many people harmed like this, due to Drs not respecting the need for a taper, and also giving meds out that should not be given! The harm is so bad as it’s your nervous system the drugs tap into and obviously that’s everything for a human to function, leaving people disabled for years of their lives.
It’s tricky as not everyone experiences withdrawal, as we are all different, so many say well these drugs save lives, but they also destroy just as many.
So.. to conclude, sadly the withdrawal, and even when you’re on the benzo, can cause behaviour that mimics mental health disorders and severe ones at that! You start to think you’re losing your mind, when in fact it’s the pill that has altered your state completely by tapping into your nervous system and creating quite the horror show. What’s so scary is you’re told it’s you, like I say it’s not taken seriously or recognised, withdrawal and tapering are met with silence in a Drs room. Drs try to then plug you with even more medications, and it turns into a real mess. Let’s hope the prescribing stops, and the withdrawal itself is taken seriously soon! Another reason to create this site is to bring awareness to this quite common medical negligence in our modern world!
A bit about me apart from this, I am an all round creative, and have worked as an actor and photographer for the last ten years, this experience has completely shaken my world, I am still not free, dealing with daily scary side effects forever changing, what I know for sure is this slow tapering is letting my body heal. At present I have just passed my sound healing training, I’ve found singing helps connect me to myself when I’m experiencing bad withdrawal effects. And I’m reminded of who I am aside from all this. I will share my coping strategies, amongst many other tips!
An important tip!
Is not use anything that will stimulate your gaba receptors in any way, whilst on, in withdrawal, or healing, people have huge set backs from taking things like magnesium or eating certain foods, especially alcohol thats a huge no! You can find more info about this on facebook groups like ‘Benzo Warrior Community.’ Through my sound training I found that to use the singing bowls or anything that creates a bineral beat, which is found in a lot of frequency healing music it can actually put you right back in withdrawal! I have met many people who have sadly had a set back from listening to frequency music. As like I say they trigger the gaba receptors that have been sensitized in this whole process. Ironic the pill makes it hard to use even a natural healing modality!
So.. I’m leading with faith and good intentions, I hope this site makes you feel less alone in this. It’s not you, it’s the pill, you are still underneath holding on.
Sending love and light to everyone out there going through this.
Emma